“I don’t think he’s going to want to prescribe that.”
“It has bad side effects and can affect your heart and he doesn’t like to prescribe it.”
Yeah, we knew about Domperidone’s side effects going into the meeting with the gastroenterologist but my GP recommended I ask about it because my gastroparesis has been getting really bad again in the last few weeks. I’ve been very lightheaded (more than usual even with POTS and I’ve been eating barely anything. It’s been hard even eating baby food. Despite mainly laying in bed, I’ve been losing weight. I have hardly any energy. I feel awful. So, we made an appointment to go back in to see the “new” gastroenterologist. I’ve been seeing this guy for about a year but we’ve been treating my gastroparesis with a low residue and mostly liquid diet as well as anti nausea medicine. Lately though that’s not enough and life is becoming bad enough that we (Master and me) have wanted to seek out more treatment.
So we went to my GP who got me some Erythromycin. It was OK, it kind of helped for a little bit, but not enough to really do anything long term. The new gastroenterologist wasn’t surprised. He said medications just don’t work very well for gastroparesis and that erythromycin wasn’t great anyway. We’ve tried Reglan a while back. (That was awful!)
So today we talked about Botox. I hadn’t talked to any doctors about Botox for gastroparesis. They told me that if it worked (it doesn’t always) it’s basically like propping the door open on your stomach so that food can just “fall out” so it treats the symptoms, but it doesn’t work for longer than three or so months at a time. So if it works, I’ll have to go and have it done every three months forever pretty much, but that’s not a big deal if it helps. There just aren’t a lot of treatment options for this disease, and this is the least invasive one now that we’ve exhausted all the drug options. There is always the Domperidone, but I trust this doctor and if he doesn’t like to prescribe it then we’re going to heed his warnings.
The procedure is going to be done under general anesthetic but it shouldn’t flare up whatever autoimmune thing I have because “we don’t have to cut you up for this” it’s just like an upper endoscopy procedure but they are also going to give me Botox shots in the valve at the bottom of my stomach to hopefully help it relax and stay open. For some people this works great. For other people, it doesn’t work at all. For some people it works for a little while and then never again.
At the beginning of the appointment the doctor and his nurse practitioner were super positive sounding but then towards the end they kept saying “IF this works…” blah blah blah. So I was like
“Well, you guys keep saying ‘if'” so what if it doesn’t’?
“I mean. There’s other surgical options.”
I think she was trying not to scare me off. But I do hope that this helps. They were careful to point out that this would only help with some of the symptoms like feeling full after eating only a couple bites and feeling nauseous and vomiting and the fact that my stomach just doesn’t empty fast. So we’ll see. It’s just day surgery. Surgery isn’t even the right word. I’ll be asleep and I’ll be under anesthesia and all, but it’s not a super mega big deal or anything. I don’t have to stay the night at the hospital. I’m not nervous about the procedure. I’ve had a lot of surgeries and anesthesia doesn’t scare me. ::Brave kitty face::
The soonest they could get me in was the 23rd of December, which is right before Xmas. I laughed with Master.
“HEY! Santa is going to bring me an empty stomach this year for Xmas!”