I’ve had a feeding tube for a few years now, and one thing I’ve always just accepted as a fact of life (albeit one of the most annoying ones though!) is that every time we go out driving anywhere at all I have to jam my right leg against my feeding tube and the door. […]
Read MoreInterventional Radiology called me up the next day at 9AM, which was three hours before I was supposed to be there, trying to tell me that they had an emergency and couldn’t do my procedure. I knew instantly they were lying. I was literally an emergency. I was sent there from the emergency room. My […]
Read MoreI mentioned in the last post that I’ve been really hoping the bleeding would settle down in my wound, but unfortunately nothing was getting better and we couldn’t just keep waiting. My doctor refused to see me until I went to the ER because in her words “I told you to go before, and my […]
Read MoreToday was the first day since we had my port revision surgery that I woke up and felt like my energy was returning. Maybe I am finally starting to turn a corner. It’s been twelve days post op, and that’s a little longer than it originally took me when I had my first port placed […]
Read MoreSnuggling in the dark with ZeeBee. I’m feeling pretty crummy today. I woke up too nauseated to take any of my pills, even the liquid stuff. I took nausea medicine (dissolves, not a pill or liquid) and I was able to take my meds. I have a low grade fever (100.0) that comes and goes. […]
Read More