Tomorrow was supposed to be my surgery day, but it won’t be. Sometimes the way forward is backwards, I guess. I had a minor surgery last week, to put my tube back in place. The tube is in place! The tube is in place. I can move around and everything and it’s not.. Problematic anymore […]
Read MoreOkay, okay. That last post was pretty angry, wasn’t it? I get really angry just thinking about the surgery a year ago. But I haven’t talked about what happened on this blog and I probably won’t ever. Definitely won’t ever. It was a nightmare. I still. My brain can’t wrap around how bad the treatment […]
Read More*Feeding tube has been… Choleric. It’s been beeping every night or so just waking me up out of a nice relaxing sleep. It’s still running right now, but every time it wakes me up, I have trouble getting back to sleep of course. I’ve had problems with insomnia for as far back as I can […]
Read MoreI was taking my tubbie, but this time was a little different than normal. I hadn’t had my port accessed in a couple of days so the skin had a chance to grow a scab over the top. Usually, I have to be really careful not to get it wet. “You know, you could lay […]
Read More“Stop saying that.” “Why? It’s hilarious?” “Also, why do you have chest pain?” “See, now you’re asking the real questions.” “…” “The tube moved more. I’m about 99.9% sure it’s that because it’s a gj-tube, and the instructions say if your breathing becomes impaired to call your doctor.” “Ah. Yeah. No other weird symptoms. Nothing […]
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